Tub Xiong (age 17) and Leng Xiong (age 16) have contracted Duchene’s Muscular Dystrophy, a sex-linked recessive genetic disorder.  This rare form of MD progresses rapidly, has no known cure and usually results in death around the age of mid-20’s.  The rapid progression leaves most youth in need of wheelchairs by the early teen years, as is the case with the Xiongs.  The parents were struggling to provide transportation for both of the boys.  With only standard automobiles at their disposal, it required two vehicles to get the two boys anywhere.  It was necessary to perform a difficult lift by a family member to maneuver in and out of the vehicle with their wheelchairs.   The parents turned to many agencies looking for assistance, but no agency could help them.

 The parents turned to Independent Living Services of Northern California for assistance.  Independent Living Services of Northern California took their request seriously and granted the family $500.  The Clifton Lewis Foundation contributed an additional $1000. By combining the two gifts, the Xiong family finally purchased a used accessible van for their two lovely children.  Leng and Tub stated that “our wish comes true.”  They also stated that “we can go anywhere we want to go together now.”

Additional information about Duchene’s MD is available at:  http://www.umm.edu/ency/article/000705.htm

Additional information about the services provided by Independent Living Services of Northern California can be found at:  http://www.ilsnc.org/services